Respect each other’s perspectives
While the decision to be tested for CGD might seem clear or even obvious to some people, not everyone may share that opinion. Make sure to start a conversation by being receptive to a family member’s concerns and point of view.
Be open and honest
Acknowledge up front that this is a difficult conversation to have and that being honest with each other about reservations or fears is the best way to move forward.
Be supportive
A CGD diagnosis and all of the information that comes with it can be difficult news to absorb. Be a supportive ally to family members while they sort through complex emotions associated with a CGD diagnosis.
Acknowledge barriers
Every family is unique and may face different barriers to getting a CGD diagnosis. They may have difficulty finding a specialist, be in denial about their symptoms, or have a misunderstanding about the cost of testing. Whatever the case may be, try to acknowledge those barriers and offer helpful information and encouragement.
Focus on what can be controlled
If a family member is feeling guilty regarding a CGD diagnosis, it’s helpful to remember that no one controls the genes they inherit or pass on. They are simply a part of the person, not something to be blamed for.
Be prepared
Approach the conversation ready with information to share about CGD and testing. If a family member wants to know more, that information is ready to help point them in the right direction.